Wow so much to update! Surgery went great! The Dr was very pleased with how it turned out. We were released after only 48 hours!! We had to be readmitted several days later for concern of shunt failure or meningitis. After many tests and blood work we were able to go home again. He began crying non stop for several days after this but we were able to adjust and add some meds without being admitted. The Neuro surgeon believes his brain is trying to adjust.
Watching Elijah transform from the frail, tiny, lifeless boy that was handed to me on Jan. 23rd has been so amazing!!! Prior to this latest surgery he was in constant pain...even after his shunt was placed. Moving him was torture, even a simple diaper change made him scream. Bathing him was something I dreaded....I know he hated it more than I did!!!! It took him so long to calm down after a bath. He never made any sounds prior to this last surgery, only crying. SO basically he would just lay there. He obviously could not roll, only minimally move his legs and arms.
OK so fast forward to May 21st....this is the day we began to see the NEW Elijah!! On this day we were all in the family room and we heard "ba, ba, ba" OH my gosh we all looked around trying to figure out who was making those sounds. Sweet Elijah was talking!!!! It was the most beautiful, precious sound I have ever heard!!!!! That was not the only change, he loves to be held!! He is still in some pain when I pick him up but nothing even close to where he was before the surgery. Moving him is so easy and he is able tolerate being in a variety of positions. He continues to "talk" and is moving is head lots more. He is figuring out that he can move his head and look straight up... he obviously could not do that before surgery. He is really more interested in toys and is working very hard at holding them. He is currently weighing 15 pounds 7 ounces!!!!!! AND he is looking like he is trying to smile, he is making different facial expressions, so very adorable!! He really is a brand new boy.....I just can't wait to see how far he goes!!!!
WITH GOD ALL THINGS ARE POSSIBLE!!!!!
Watching Elijah transform from the frail, tiny, lifeless boy that was handed to me on Jan. 23rd has been so amazing!!! Prior to this latest surgery he was in constant pain...even after his shunt was placed. Moving him was torture, even a simple diaper change made him scream. Bathing him was something I dreaded....I know he hated it more than I did!!!! It took him so long to calm down after a bath. He never made any sounds prior to this last surgery, only crying. SO basically he would just lay there. He obviously could not roll, only minimally move his legs and arms.
OK so fast forward to May 21st....this is the day we began to see the NEW Elijah!! On this day we were all in the family room and we heard "ba, ba, ba" OH my gosh we all looked around trying to figure out who was making those sounds. Sweet Elijah was talking!!!! It was the most beautiful, precious sound I have ever heard!!!!! That was not the only change, he loves to be held!! He is still in some pain when I pick him up but nothing even close to where he was before the surgery. Moving him is so easy and he is able tolerate being in a variety of positions. He continues to "talk" and is moving is head lots more. He is figuring out that he can move his head and look straight up... he obviously could not do that before surgery. He is really more interested in toys and is working very hard at holding them. He is currently weighing 15 pounds 7 ounces!!!!!! AND he is looking like he is trying to smile, he is making different facial expressions, so very adorable!! He really is a brand new boy.....I just can't wait to see how far he goes!!!!
WITH GOD ALL THINGS ARE POSSIBLE!!!!!
Oh sweet Elijah - I am filled with tears with this update. My daugther and I have checked back every day to see how you were doing after surgery. This is such beautiful news to read.
ReplyDeleteToday is a beautiful day. Thanks and hugs to your host mom for all she's done for you. God bless you all.
Thanks Karen!!! He is such a blessing to us!!
ReplyDeleteHeather
This so reminds me of my sweet Ella. She had the same head shape and was so miserable before her surgery. After she was like a newborn progressing rapidly into a social little butterfly. It was awesome to witness and I pray for elijah to continue to thrive, grow and progress in his development. Praise God. Love you friend.
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